Receiving a cancer diagnosis is emotional, overwhelming and deeply personal. But if you or someone you love has just heard the words “you have cancer,” know this: you’re not alone, and you don’t have to figure it out all at once.
Get expert advice on what to expect in the days and weeks following a diagnosis from Katie Rogge, the system manager for quality-of-life oncology support services at OhioHealth, so you can navigate this difficult time with more clarity and confidence.
First steps after diagnosis
One of the most common questions patients want to know the answer to after a diagnosis is: What does this mean for my life? Rogge says patients want to know their prognosis, what treatment for their cancer will look like and how potential side effects from treatment will impact their daily life. Many wonder if they’ll lose their hair or experience pain or fatigue.
But in many cases, those answers aren’t immediately available. “Oftentimes, a treatment plan isn’t finalized at the initial consultation,” Rogge explains. Additional testing may be needed before a full treatment plan can be determined. This process can take time and the waiting, understandably, can cause anxiety for patients.
“Everyone’s cancer journey is unique,” says Rogge. “Even two people with the same type of cancer may receive very different treatment plans and experience side effects differently.” That’s why it’s important to take your diagnosis one step at a time, ask questions and lean on your support system.
While your care team will help guide you through the medical decisions ahead, Rogge recommends doing these essential things right away:
- Write down your questions. It’s normal to forget what you want to ask during a consultation. Keeping a journal or notes between appointments ensures you’re ready to get the answers you need.
- Bring a support person. Having someone with you can help with emotional support and remembering details.
- Connect with a navigator. OhioHealth’s navigators are trained to guide patients through the entire process. They’re here to make the journey less overwhelming.
The role of the patient navigator in cancer care coordination
One of the most valuable resources for someone newly diagnosed with cancer is a cancer navigator. Navigation teams can include nurse navigators, social workers and dietitians that work together to support patients through their cancer journey. Navigators get involved early to build relationships with patients and help facilitate care throughout the treatment journey.
They help to:
- Coordinate appointments with specialists
- Explain medical terms and provider roles
- Screen for psychosocial needs to personalize support
- Evaluate diet and provide nutritional support
- Help patients access financial, lodging or transportation assistance
- Connect patients with resources for emotional or physical comfort
Navigators are your personal guide for cancer care, helping to bear some of the mental load during an emotional and stressful time.
Learn more about the role navigators play on The Wellness Conversation podcast.
Coping with the emotional side of cancer
Emotional support is a cornerstone of cancer care at OhioHealth. Taking care of your mental health during diagnosis, treatment and recovery is important for your well-being.
OhioHealth’s navigation team connects patients with mental health resources like counseling services and integrative therapies like massage and acupuncture. Support groups are available to help you connect with others who truly understand your journey, offering a space to share experiences, listen and grow together.
Caregivers need support too. “We don’t just support the patient — we are here for those that love and care for them too,” Rogge says. Caregivers are encouraged to practice their own self-care and get their questions answered, too.
Take it one day at a time
Feeling overwhelmed or afraid is natural — and valid. Rogge encourages patients to focus on what they can control. “Take it one day at a time,” she says. “Focusing on what you need to do today feels easier than worrying about six months from now.”
If you’ve been diagnosed with cancer, the most important thing Rogge wants you to know is: “You are not alone. We have resources, we have people, we have a navigation team — all here to come alongside you and support you through your journey.”
Whether you’re newly diagnosed with cancer or supporting someone through it, know that it’s completely normal to feel afraid — and reaching out for help is not only okay, it’s encouraged. Your care team is here to help support and guide you so can find your footing, one step at a time.
To continue exploring the world of what cancer looks like for you or those around you, check out more of the OhioHealth Wellness Blog.
